How to get an ADHD or autism diagnosis in the UK

Published 13 May, 2025

Receiving an ADHD or autism diagnosis can be life-changing, not just for the individual, but for the whole family. These neurodevelopmental conditions can affect many parts of daily life, from school and work to friendships, routines and emotional wellbeing. The path to diagnosis often starts with questions or concerns, maybe a gut feeling that something’s different. When a diagnosis finally comes, it can bring a mix of emotions: relief, grief, validation, even overwhelm. But most of all, it brings clarity.

Getting a formal assessment helps explain behaviours that may have felt confusing or frustrating, and it shines a light on both challenges and strengths. It opens the door to support, therapy, adjustments at work, university or school, and can even improve relationships. For many, it brings clarity to years of self-doubt. Most importantly, it invites a shift in mindset – from trying to ‘fix’ a problem to understanding yourself more deeply. Wired differently, and that’s a good thing… right?

For many individuals and families, this understanding becomes the foundation for stronger advocacy, deeper connection and a genuine celebration of neurodiversity. To be neurodivergent and proud of it.

Embracing ADHD and autism without apology  

In recent years, ADHD and autism have been showing up more in everyday conversations — on social media, in schools, at work, and around the dinner table. This growing visibility is helping break down stigma and shift how we think about neurodiversity. As more people learn about these conditions, we’re not just noticing the signs in ourselves or our kids — we’re also beginning to better understand and appreciate the unique strengths that often come with being neurodivergent.

“People with ADHD can struggle with significant disruption to their personal and professional lives if the condition is left untreated. It’s good to see public awareness of the disorder has grown and that more people are coming forward for a diagnostic assessment and treatment.” 

Dr. Peter Carpenter from the Royal College of Psychiatrists highlights the increasing demand for ADHD assessments and the importance of early diagnosis (Royal College of Psychiatrists, n.d.). 

While increased awareness and reduced stigma are undoubtedly a good thing, it has resulted in greater demand for ADHD and autism assessments nationwide. Since 2019, there has been a fivefold increase in people waiting to see an autism specialist and a 400% rise in adults seeking an ADHD diagnosis.    

ADHD and autism diagnosis pathways in the UK 

In the UK, there are two main routes to receive an ADHD or autism diagnosis:  

NHS assessment – Publicly funded, but many people face extremely long wait times, sometimes over three years.

Private assessment – Self-funded through providers like Xyla, offering significantly shorter wait times, more flexibility and faster access to support. 

Both the NHS and private providers like Xyla follow national clinical guidelines, including those set out by NICE (National Institute for Health and Care Excellence), but waiting times, accessibility and flexibility can vary significantly between the two. 

NHS assessments 

To get an ADHD or autism assessment through the NHS, the first step is usually to speak to your GP. For children and young people, this often leads to a referral to services like CAMHS (Child and Adolescent Mental Health Services). For adults, your GP may refer you to a community mental health team or a specialist neurodevelopmental service. These assessments are thorough and fully funded by the NHS.

However, demand for support has grown significantly, and NHS services are struggling to keep up. This has led to extremely long waiting times, limited appointment availability and little flexibility when it comes to choosing your clinician or appointment time. 

According to NHS England Digital (2024), over 212,000 people were waiting for autism assessments as of December 2024. While there’s no single national figure for ADHD waiting lists, the NHS estimates that nearly 200,000 people are currently waiting for an assessment. 

Benefits of NHS assessments:
  • Free of charge: No direct cost to the patient. 
  • Integrated NHS care: Access to other public services and follow-up options. 
  • Recognised diagnosis: Widely accepted by schools, employers and healthcare providers. 
  • Standardised assessments: Follow national clinical guidelines (NICE). 
Considerations of NHS assessments: 
  • Long wait times: Often between one to three years, sometimes longer.  
  • Limited flexibility: Less choice over appointment times or which clinician you see. 
  • Strict referral processes: For some, getting a referral can be a challenge due to high demand and limited service capacity. 

Private assessments 

Private assessments offer an alternative for those who wish to avoid long waits and have more control over how and when they’re assessed. These are typically paid services, available through a wide range of providers, and offer faster access to qualified clinicians, many of whom also work within the NHS and adhere to the same clinical standards. 

The quality, cost, and comprehensiveness of private assessments can vary, so it’s important to choose a provider with a strong clinical foundation and transparency in their approach. 

Benefits of private assessments: 
  • Reduced wait times: Often available within weeks, not months or years. 
  • Greater flexibility: Appointments can often be arranged around work, school and family commitments. 
  • Tailored experience: More choice in provider, appointment format (e.g. online), and clinical specialism.  
  • Detailed reports: Often comprehensive and suitable for use with schools, employers, or for legal support. 
Considerations of private assessment: 
  • Cost: Typically ranges from £800 to £2,000+ depending on the provider and assessment type. 
  • Varied quality: Not all private providers follow national clinical guidelines or produce reports recognised by the NHS, schools, or employers. 
  • Aftercare: Some providers may not offer follow-up support or guidance after the diagnosis.  

“Early diagnosis and intervention are key to improving life outcomes for individuals with ADHD. It’s not about labelling; it’s about understanding and supporting a person’s needs from the start.” 

Dr. Tony Lloyd, CEO, ADHD Foundation 

What to expect during an ADHD or autism assessment 

Whether you’re seeking an ADHD or autism assessment for yourself or your child, understanding what happens during the process can ease anxiety and help you feel more prepared. While this may differ depending on your chosen route and provider, you can generally expect the following key stages: 

1

Initial screening

You’ll complete questionnaires to provide background on symptoms, development, and daily functioning.

2

Clinical interview

A specialist clinician will explore your history, current challenges, and behaviour patterns. For children, this often includes input from parents, caregivers, or teachers.

3

Standardised assessments

These may include observational tools or cognitive tests depending on the condition being assessed.

4

Feedback and detailed report

After the assessment, you’ll receive a comprehensive report with the outcome, recommendations, and next steps for treatment or support.

Choosing Xyla as your private provider means you can access high-quality ADHD and autism assessments entirely online, offering trusted, clinically assured support from the comfort and privacy of your own home. With a proven track record of delivering thousands of remote assessments, Xyla also provides expert post-diagnostic care to ensure you feel supported every step of the way.

How to prepare for your ADHD or autism assessment 

Preparing thoughtfully ensures the clinician gets the full picture, helping you get the answers you’re looking for. Being well-prepared can make a big difference to the quality and clarity of your assessment. Here are some helpful tips: 

Reflect on your experiences: Make notes about behaviours, challenges or patterns that have impacted your life or your child’s life.

Gather supporting information: School reports, previous health records or workplace feedback can provide valuable context.

Involve key people: For children, teachers or family members who know them well may offer important insights. For adults, close friends or partners can sometimes help with examples.

Be honest and open: The more accurate the information shared, the more reliable the outcome.

Why choose Xyla for your ADHD or autism diagnosis?  

Choosing a private provider is a big step, and it’s important to feel confident in who you trust. At Xyla, we make the process easier to access, supportive and clinically excellent. 

Our assessments are led by experienced clinicians who also work in the NHS and follow the same national clinical standards, including NICE guidelines. That means you’ll receive a trusted, recognised diagnosis, without the long wait. Our fully virtual services mean assessments can be completed from the comfort of your home with flexible appointment slots that fit around your life. 

We offer: 

  • Virtual assessments, available in weeks (no GP referral required) 
  • Expert assessments led by clinicians who work across both the NHS and private sector
  • Recognised diagnostic reports for schools, employers and healthcare professionals 
  • Tailored post-assessment guidance, helping you navigate your next steps 

After your diagnosis: what comes next? 

Receiving a diagnosis for ADHD, autism, or both can bring clarity, validation and a sense of direction. At Xyla, we believe it should also open the door to meaningful support. 

A diagnosis should empower you, not overwhelm you. That’s why we provide clear next steps, practical support and guidance to help you move forward with confidence. 

Xyla provides:  

  • Access to support services: This may include referrals to therapy, coaching focused on wellbeing and lifestyle, help accessing ADHD medication (if appropriate) and guidance on educational or developmental support. 
  • Removing barriers in work and education: A formal diagnosis can help unlock support such as reasonable adjustments, extra time in exams, or assistive technology. 
  • Ongoing care options: As part of our personalised and holistic approach to care, Xyla will guide you through the next steps with tailored aftercare plans and continued access to expert clinicians. 
  • Community support resources: We’ll guide you to trusted support groups and information that can help you feel connected, build confidence and better understand your or your child’s unique strengths. 

Moving forward with confidence 

For many individuals and families, the decision to go private is driven by the need for answers. While the NHS remains a valuable route for many, private assessments can be a lifeline, particularly when long waits are impacting education, work or mental health. 

If you’re exploring private assessment options, choosing a provider like Xyla means you don’t have to compromise on clinical quality while benefiting from faster access, greater flexibility and post-diagnostic support. 

If you’re ready to take the next step, Xyla is here to help 

You don’t have to wait years or even months for clarity. With Xyla, early assessment means earlier support, so everyday life feels less overwhelming and a lot more manageable.

We offer a free phone consultation to answer any initial questions. We’ll listen, understand your needs and guide you toward the right assessment or support. There’s no obligation, just reassurance and a helpful conversation.

Book a free consultation

References 

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Please note: We are not an emergency service, if you are in crisis and need urgent support or are worried about immediate risk of harm to self or others, please call 999. Alternatively, you can contact your GP and ask for an emergency appointment or visit your local A&E department. You can also contact the following services 24 hours a day, 7 days a week: NHS Helpline (111) and Samaritans (116 123)